Well I was hoping to get the kids test results back for 22q11 but nothing as yet. Logan now weighs 11lb 14 and apparently he isnt gaining enough so within the next 2 weeks Ive gotta try and stuff and extra ounce into each of his bottles plus a breakfast meal as well as a teatime one.
TBH Weaning isnt going well I feel like he is constantly spitting it out and Im repeatedly shoving it bk in. I will try and do as they ask but I dont think its gonna be easy....NG Tube will then be put in if no change :(
He is doing well otherwise. SAT'S are good 89%..he is on no medication except an inhaler and calorie stuff for his feeds. He is obviously hungry as the past 2 nights he hasnt eaten his tea he has been waking 2-3 times in the night.
Another battle to over come i guess.
We are seeing Dr Derrick in 2 weeks and Im dreading it tbh...he will wanna discuss surgery. Wish I could hide away.
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