5th September 2008 I found out I was pregnant with my baby boy :)
All of our scans were normal...a healthy baby or so we thought. I always thought he looked like Rian here he has his nose. 23+6 scan
My C section was booked for 14th May and I couldnt wait...huge wasnt the word, everyone expected a big baby but Logan was a weeny 6lb 4oz
Logan was born on the 14
th May 2009 at 1.01pm . After 15 long months of trying for him he is a much wanted baby. We had a problem free pregnancy and were so happy when Logan came into the world.
All was going great, we were discharged after 2 days in hospital and had 3 fabulous weeks at home.
When Logan was 3 weeks old he got a nasty cold that we had all had, he was so bunged up and saw the Dr on Monday 8
th June where he was prescribed Saline drops for his snotty nose.
On the 10
th June I decided to get Logan weighed. He had lost a couple of ounces and the health visitor Anette wanted me to see the nurse again as his cold was no better. We saw the nurse who then asked Dr Rudd to come in and assess his breathing. His
respiratory rate was high and Dr Rudd wanted us to go to Queen Elizabeth Hospital in Kings Lynn. In the lift of the hospital I thought it would be a waste of time, he only had a cold like we had all had and kids get colds all the time right?
Once in our side room the nurses came in and did the usual Obs on him. One nurse sucked all the snot out of his nose. It was horrible seeing that tube being stuffed down his nose.
A paediatrician then came in. She wanted a chest
xray to see if his chest was clear. She then picked up a heart murmur. At this point I was thinking
that's ok sometimes they fix
themselves!
So an echo was ordered. The
xray was done then Dr Rubin came to do his Echo. She was talking to her colleague with big words I
didn't understand..large overriding Aorta was mentioned
alot and
VSD. I broke down and ran out of the room to call Lee and i just kept saying to him
theres something wrong with his heart its his heart.
Dr Rubin then explained to me that Logan had something called
Tetralogy of
Fallot and gave me a little booklet which I read 100 times over. Brain damage/death/open heart surgery/and bypass machine words stuck out at me and I cried pretty much all the time during our stay in hospital.
Logan was hooked up to a
SAT's monitor and oxygen tube for his nose.
On Friday 12
th June we were transferred to Great
Ormond Street Hospital in
London to attend Dr Derricks clinic. He is a Paediatric Consultant Cardiologist. He did an Echo on Logan and confirmed Dr
Rubins findings and also that his Pulmonary valve was
missing AKA Pulmonary
Atresia.
Logan was sent back to
QEH to finish his antibiotics for his chest infection and to be taken off oxygen as that would make him more breathless.
A cardiac catheter procedure was done on 3rd July. We stayed in London for 2 days and did a bit of sightseeing while we were there. Logan was so good he had to be starved for a good 7 hours and he only cried the last half an hour.
All you think about is how can this be happening to my baby, is he going to make it and you basically feel like your world has ended and your not going to cope. Tears come and go, I was even scared to hold him at one point.
A diagnoses letter came through once home and Logan has Pulmonary
Atresia with
VSD, Right Aortic Arch,
MACPAS, and 22q11 deletion which is a
chromosome deletion aka
DiGeorge syndrome.
Logan has been put on
Infatrini to help him gain weight for his 1st operation.
They plan on joining up his collateral blood
vessels as the
angio showed he has high blood flow to the left lung and not so much to the right. So they want to join them all back up back to his heart and a conduit valve then close his
VSD but leave a small gap as a blow off valve.
This will all be done once Logan is bigger as its a tricky operation.
