Confirmed!

Brendans test results came back with him having 22q11 deletion, it was to be expected.

Logans cardiologist appointment 13th October 2009

Saw Dr Derrick today. Logan has a slight wheeze so has been put on Diuretics to make him less breathless and as he has high blood flow hope it takes some of the moisture from his lungs.

Thats all that was really done, no echo etc! Still no test results! No surgery before xmas so we are taking the kids to Disneyland Paris at the end of January..something to look forward to. Also planning on getting Logan christened on 6th Dec. Im also fundraising got a sponsored walk on 21st Nov so BUSY BUSY

Best way to be atm.

Recent pic of Logan

Hospital appointment yesterday

Well I was hoping to get the kids test results back for 22q11 but nothing as yet. Logan now weighs 11lb 14 and apparently he isnt gaining enough so within the next 2 weeks Ive gotta try and stuff and extra ounce into each of his bottles plus a breakfast meal as well as a teatime one.

TBH Weaning isnt going well I feel like he is constantly spitting it out and Im repeatedly shoving it bk in. I will try and do as they ask but I dont think its gonna be easy....NG Tube will then be put in if no change :(

He is doing well otherwise. SAT'S are good 89%..he is on no medication except an inhaler and calorie stuff for his feeds. He is obviously hungry as the past 2 nights he hasnt eaten his tea he has been waking 2-3 times in the night.

Another battle to over come i guess.

We are seeing Dr Derrick in 2 weeks and Im dreading it tbh...he will wanna discuss surgery. Wish I could hide away.