Im trying to get them to understand that heart babies do not gain weight well especially those babies with Digeorge syndrome. Poor weight gain is one of the symptoms and Im really lucky he feeds by himself. Discussions will be held next week and Im worried they will suggest an NG feeding tube. I really do not want this for him yet as he feeds by himself and feeds well. I know its going to be an option when he has surgery so he doesnt waste energy.
So I think im in for a fight with health visitors and dieticians. I know he needs to pack on weight before his 1st operation but I think we just have to let Logan do that by himself. I will worry when he looses weight and becomes withdrawn but atm he is a happy smiley baby.

really hope they listen to u hun..he is absoloutly gorgeous xxxxx
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